"An Angel in the book of life, wrote down our baby's birth

and whispered as she closed the book...

too beautiful for earth..."

Katelyn’s Story

March 9, 1996-December 5, 1997

 Let me say this is the hardest story I have ever written.  Katelyn was my granddaughter. Her story began March 9, 1996, the day she was born. As most grandparents will tell you, our grandchildren are the most beautiful and perfect in every way. My daughter was very young when she had Katelyn. We brought Katelyn home when she was 1 day old. She was a good baby; never cried and was a real joy. I just loved holding and spoiling my first grandchild.

When she was 10 days old we had just arrived home from church when my daughter noticed a difference in her color and breathing. I am a firm believer in mother’s instinct. I asked her what was her gut feeling and she said let’s get her to the hospital. So off we went. We lived about 20 minutes from the closest hospital and made it in 10. They rushed her right in. My daughter and I waited in the waiting room and sent a prayer up for God to keep her safe. After what seemed like hours they called us into a room and told us they were flying her to a children’s hospital 30 minutes away by car. They also told us they didn’t think she would make it through the night. They wouldn’t let us fly with her so back in the car we went. I beat the helicopter there. When they landed the pilot had her wrapped in his coat and was running to the hospital. I was running right beside him and he said he couldn’t tell us anything. I said I just want to know if she was still alive. And he said barely. So my daughter and I prayed (not one of those silent prayers) we made sure God heard us.

The waiting began. 6 hours later they called us into a room where my daughter’s heart doctor met us. My daughter, Christy, had to have heart surgery when she was a baby. She had 2 big holes in her heart and only 1 valve where there should have been two. I had asked this doctor if Christy had any children would they have heart trouble. He told me it would be 1 in a million chance. Dr. Blancher told Christy that Katelyn had Hyperplasic left heart. This means she was born with out the left hand side of her heart. He told her there were 3 choices.  1. Let her go. 2. Put her on a list for a heart transplant and he would guarantee she wouldn’t make it until then. Or 3, have 3 different heart surgeries to try and get her ready for a heart transplant.  My daughter looked at me and the hardest thing I have ever done was tell her,  “Baby it is your decision”. While on the end side I was praying. She looked and me and said,  “Mom I want her to have a chance”. With a sigh of relief I held her. They let us go in for 2 minutes to see her before they flew her 8 hours from where we lived.



It took me 6 hours to drive the 8 and when we got there we went right to the hospital. They had all kinds of tubes and a respirator hooked up to her. They told us she would always be on a respirator. She could not live with out it. They sent us over to Ronald McDonald house. That’s where we stayed for 3 months. We could only see her 3 times a day for 15 minutes. The doctor told us they had to get her weight up to have the first surgery. This was March 20th. They wanted us to meet with the surgeon, Dr. Alexander. Dr. Alexander was the surgeon who did Christy’s surgery 16 years before. Now he was going to do her daughters. The nurse told us to act as if everyday was the last day with Katelyn and to get all the love and kisses we could.
Not a visit went by with out prayers for her. Even the nurses prayed with us. Every Saturday was a party day celebrating 1 more week of life. On Easter Sunday I was determined she was going to have an Easter dress and basket. The nurses helped Christy dress her up in a dress for a newborn that was a mile too big. But my baby had her new dress. We got pictures of her first Easter. She was 4 months old and was finally up to 10 pounds.
So surgery was set. We notified our pastor and family. They told us she had about 30% chance of making it through surgery. The surgery was to take 8 hours. 10 hours later we were still waiting for some kind of word. The waiting room was right across from the ICU where she would be. I went to the rest room and prayed that God would please give me a sign of what was going on. And in a second of weakness I said never mind I don’t want to know. I came out of the room crying and there on the door was a sign that read KATELYN THOMPSON HEAD FIRST. I got Christy and showed her and we could hear a gurney coming. All we could see was that it was a baby and she was alive. Talk about some Thank you Prayers, boy did we let them fly. The doctor told us the next 24 hours would tell the tale. 1 hour after Katelyn go
into ICU, they told us that Katelyn went in at 10 lbs. and came out at 14. She was so badly swollen they couldn’t close her chest. So they let the pastor and us in for 2 minutes. Doctor Alexander sat by her
 room. The next morning he came and got us. He told us it was by Gods grace she was still here. By all rights she shouldn’t have made it through the night.
A week later they closed her chest and the next day Katelyn pulled out her respirator. They got the Doctor in there Stat. He watched her for 3 hours and told the nurse to leave it out as she was breathing OK on her own. They told us we needed to live there close to the hospital because she still needed 2 more surgeries. After 3 weeks we got to bring her home.
Every week she had to go to the hospital for bunch of tests. They kept a heart monitor on her because her voice box was damaged and she couldn’t cry. After 3 trips (which took 8 hours to drive) they said we needed to be closer to them so we moved down there. I sold my home and we rented a place in Gainesville, Florida… 5 minutes from the hospital. We had to be extra careful with Katelyn. If she got a cold then into the hospital she would have to go. This went on for over a year. The doctors told us they didn’t think she would have to have any other surgeries. That she could go on the transplant list.
At 17 months old Katelyn was in the hospital getting over an ear infection. My daughter stayed at the hospital with her. Since she was in a private room they would only let one of us stay. So I would go home at night.
 I had laid out a change of clothes and had a bag all packed for when the call came in about a heart. Katelyn was to come home the next morning. About midnight my daughter called crying, “Mom how fast can you get to the hospital”? I wanted to know what was the matter but she just kept crying. I lost it I yelled at her, “Christy what the heck is wrong”? Her reply was “They have a heart for Katelyn”.
So I jumped to get dressed and couldn’t find anything. I just grabbed. I went to the hospital with my shorts on back wards and my shirt inside out. I was running down the hall so afraid I wouldn’t make it in time to give her a kiss and tell her how much granny loved her. The nurse told me to slow down because we had some time as they where still waiting on the heart to get there. We were of mixed emotions. Thankful Katelyn had a heart and yet very up set another child had to die for her have it.
 That’s the one thing my daughter and I never prayed for. We did pray for God to have his will and what ever it was we would praise him for it. We then prayed for the other family knowing how they must have felt. What wonderful people for them to give us such a gift.

We made the phone calls to family and our pastor. They arrived after the surgery had started. It was a 12 hour surgery. There is a little room right next to the waiting room and when a child didn’t make it they would call the family in there. There were a lot of families that went into that room. I prayed God please don’t let them call us to that room. After 13 and a half hours they brought

1 hour after they brought her out of surgery she tried to turn over. We just knew she was going to be okay.

The last time we got to go to our church Brother Bill preached about the woman at the well. And when Jesus spoke to her with her child dead in the house she replied all is well. Well that became my Motto. NO matter what it was ALL is well. For 3 weeks after the surgery my daughter stayed with her during the day and I stayed at night. They didn’t want us to leave just in case. So when I slept it was in the back of a truck in the parking lot. Finally she got to come home. She had to go back once a week to the clinic. You should have seen her with her ball cap on and a hospital mask on and her sun glasses. Katelyn wasn’t scared of anyone or anything. We were waiting for her appointment and there was a child there and the little face was disfigured. We could see adults staring at her. Made me want to smack them. Katelyn grabbed her and gave her the biggest kiss. The mother cried. It was the first time another child had had anything to do with her little one. Talk about 2 people that were proud. Katelyn had touched her life. Boy, had she ever touched mine! She showed me how to live. How to thank God for things we take for granted. To be honest, she was the reason I went to church to start with. She brought my daughter so much closer to me.

November came and Katelyn was 20 months old when Christy got me up in the middle of the night because Katelyn’s pulse was 210. When a transplant patient comes into the ER they are not to wait. They are supposed to go straight back. Well, they told us to have a seat. I took Katelyn’s pulse and it was 250 so I knocked on the door and the nurse came and yelled at me to stop knocking on the door and wait my turn. I grabbed her and made her take Katelyn’s pulse. She grabbed Katelyn and off she ran. It seemed like days before the Doctor came out and told us they couldn’t get her heart rate down. Her pulse was 350 and if they couldn’t get it down her heart would explode. They wanted

to use electric shock. My daughter told them to do what ever it took. I went to the phone and called my pastor and said ALL IS WELL and cried. After shocking her twice they finally got it under control. A week later she came home.

We had our Thanksgiving and we had found a nicer trailer to move into on the 9th of the month. The first of December we took Katelyn to have her Christmas pictures made. We had all our Christmas shopping done .We had packed and my daughter was taking a load of stuff to our new place and I took Katelyn to her regular clinic appointment. She had to have an Elcho cardiogram (ultra sound of the heart) She had to have one every week. Well, this time it was different. The doctor said there might be something wrong and he wanted to admit her. So I got in touch with my daughter and they admitted her. She was playing and eating french fries which was her favorite food. They didn’t put her in ICU so I went home that night but was back there at 7am. She was playing. At 9am they rushed her into ICU. At 10am they called us into THE ROOM. They told us they didn’t think there was anything they could do. I can still hear my daughter saying, “Mom I can’t lose my baby”. I told her to pray as hard as she could. We prayed for a healing and for God to have his will. The doctor came in and said it was just a matter of time. That he didn’t know how she was still hanging on. My daughter told them she wanted to hold her. So they took us in and they placed her in her arms and I put my arms around them both. My daughter told her, “Baby you have fought hard to stay with mommy and mommy and granny love you so much. But God loves you even more and he needs you to go home. So it is okay to go. Just take grandpa’s hand and he will take you to God”. And he did.

My daughter laid her on the bed and gave her a bath and dressed her in a pretty dress. The hospital made arrangements with the funeral home for us to pick her up there and take her back home. They placed her in her car seat and she looked like she was asleep. We drove the 8 hours back home.

My daughter didn’t want a regular funeral… she wanted it to be just like when we went to church. Which Katelyn loved. The church was packed. They sang her favorite songs and family after family stood up and told us how Katelyn had touched their lives. Brother Bill preached on the woman at the well again with tears running down his face. His wife, Miss Marion, sang On Holy Ground. That was the first time I ever saw her having to stop in the middle of a song. Bill told us we prayed for a healing and Katelyn got the ultimate healing.

I have been asked if I believe in ANGELS. Well, I know one personally.

By: Shirley Goodwin

Katelyns Poem written by her Mother





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